Arches. Photo by Daniel Chia
HOPES: Huntington's Outreach Project for Education, at Stanford
Oct
27
2010

About

HOPES is a team of faculty and undergraduate students at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to the public. Our goal is to survey the rapidly growing scientific literature on HD and to present this information in a web source. We seek to provide information about causes, symptoms and treatment of HD that reflects current scientific understanding of HD. To date, HOPES resources have reached out to families in over 47 countries.

We emphasize that we are neither medical professionals, nor are we affiliated with the researchers and laboratories mentioned on our pages. The information we present is intended for educational purposes only and should not be construed as offering diagnoses or recommendations. We operate as a not-for-profit public service organization, and our funding is entirely from private sources.

Meet the HOPES Team

Students^

Ravali Reddy (Project Leader, Student Researcher)

Ravali is a junior double majoring in Communication and Biology who joined the HOPES team in March 2012. Being a premed student who really enjoys to write, Ravali was thrilled to find a program such as HOPES that allowed her to bring together her two different interests in the name of medical outreach. As a member of the class of 2014, Ravali also serves on the sophomore class cabinet and writes a weekly opinion column entitled “Ravalations” for the Stanford Daily. She often spends time wishing life were more like a Bollywood movie, but instead had settled for captaining Dil Se, Stanford’s only nationally competitive co-ed Bollywood fusion dance team.

Amy Lanctot Amy Lanctot (Student Researcher)

Amy is a student researcher who is thrilled to be joining HOPES. A member of the Stanford class of 2013, she plans on majoring in Biology, with an emphasis on molecular and cellular biology. She joined HOPES because she is very interested in the biological workings of Huntington’s Disease and its treatments. She also thinks that compiling all the research on the forefront of HD into one website written to be accessible to everyone is a brilliant idea. Her favorite part of HOPES is getting to meet so many remarkable people who share her goals. In her free time, Amy enjoys dancing, writing for the paper, reading, and watching bad British television.

Jeffrey Choi Jeffrey Choi (Student Researcher)

Hailing from Vancouver, Canada, Jeffrey is a member of the Stanford Class of 2013 and joined HOPES as a student researcher in April 2011. As a peculiar double major in Classics and Biology, he delights in the ancient tales of audacious conspiracies, erotic love, and heroic myth, all the while engaging in cutting edge laboratory research. Just as he enjoys the intellectually rewarding processes of deciphering archaic languages and understanding pathological mechanisms, he hopes to employ the same translational mindset in simplifying and condensing scientific material to enhance accessibility for the HD community he has grown to deeply respect. In his spare time, Jeffrey likes throwing pots (the ceramic kind), watching animal videos, and constantly reliving the fun and games of childhood.

Julia Nguyen Julia Nguyen (Student Researcher)

Julia is a student researcher and member of the Stanford Class of 2013.  She plans to major in biology, possibly with honors. She’s very pleased to be working with HOPES as it combines her two loves of writing and of studying the nervous system, and she is considering a career in medicine later down the road.  Her other interests include listening to music, doing community service, reading fiction, attempting to write fiction, and doodling in her notebooks.

Cindy Au (Graphic Designer)

Hailing from Houston, Texas, Cindy is a Senior majoring in Biomechanical Engineering. Growing up in a small province in the Mekong Delta of Vietnam, she immigrated to the United States with her family in 2003. Cindy joined HOPES in April 2011 as a graphic designer out of the desire to learn more about how she can apply her engineering and design skills to helping patients with movement disorders. She is very grateful for the heartwarming exposure to the HD community HOPES has provided her. When she is not too busy being a workaholic, Cindy enjoys drinking tea, heartfelt conversations, reading, doing nonprofit work, and tinkering with things.

John Pulvera John Pulvera (Webmaster)

John is a junior majoring in Computer Science with an emphasis on Human Computer Interaction. As a webmaster for HOPES, he enjoys working on innovative ideas to help improve the content and accessibility of the website. He joined HOPES for the opportunity to make a difference and apply his skills to the challenge of making HOPES a helpful resource. One of his favorite part about being on the HOPES team is working with such a talented and passionate group of people.

Chelsey Bartlett (Student Researcher)

Chelsey is a pre-medical junior majoring in Human Biology and a lover of books on the side. She joined HOPES as a student researcher in March 2012 with the desire to further her knowledge of medicine and writing. Having studied medical literature in the past, she hopes to put her research skills to use to further the efforts of HOPES to inform the public about Huntington’s Disease. In her all-too-fleeting spare time, Chelsey is outside shooting on the range with the Stanford Archery Team or tutoring middle school students in Palo Alto with Dreamcatchers. Occasionally, she even finds the time to eat at her favorite restaurant, Chipotle, or take long, luxurious naps.

Serenity Nguyen (Graphic Designer)

Serenity is a junior majoring in Mechanical Engineering and joined HOPES as a Graphic Designer. She is interested in contributing to HOPES’ intellectual coffers concerning Huntington’s Disease and looks forward to utilizing her passion for design and art to do so. She enjoys music of the lowest fidelity and improving her vertical jump. One day she plans to move to Portland to manage a chain of off-brand micro-breweries.

Kristen Powers (Student Researcher)

Kristen (HasSuper) Powers is an enthusiastic member of the Class of 2016, trying to make her generation the last one with Huntington’s disease. After watching her mum struggle with the disease and facing her own at-risk status, Kristen set out to make a documentary called Twitch (twitchdocumentary.com) to highlight the challenges faced by those enduring Huntington’s disease and genetic testing. Thankfully, she tested negative and is now even more excited to have the chance to throw surprise birthday parties, meet cool people all over the world, and find her way out of Stanford’s Green Library. Fun Fact: She lives on a farm with 40 pets in North Carolina.

Iberia Zafira (Graphic Designer)

Iberia Zafira is an Earth Systems senior on the anthrosphere track. Iberia spent the past year studying design and management in Dubai, UAE and art and environmental policy in Paris, France. In Paris, one of her projects was designing publications for the European Commission’s EU EcoLabel and Green Public Procurement. She is very excited to work with HOPES this year!

Will St. Amant (Student Researcher)

Thrilled to be new to the HOPES team, Will is a sophomore and is enthusiastically dabbling in a variety of science classes. He is fascinated by pathology and physiology, but also just about anything else if he thinks about it long enough. In his free time he plays polo, paints, swims, drives barefoot on the twisting roads behind campus, or winds down on the porch. Currently, he is plotting how to keep a pet dog on campus and learning how to make a hammock. He considers himself, though somewhat arbitrarily, in a constant state of adventure.

Andrea Hinton Andrea Hinton (Student Researcher)

Lina Vadlamani Lina Vadlamani (Student Researcher)

Brian Ombonga Brian Ombonga (Web Developer)

Academic Advisors^

  • Morgan Thompson, Ph.D. – Editing Consultant
  • Danielle Simmons, Ph.D. – Editing Consultant
  • William Durham, Ph.D. – Faculty advisor, Bing Professor in Human Biology, Department of Anthropological Sciences

Past Team Members^

  • Aimee Zhang – Project LEader & Student Researcher, B.A. in Psychology
  • Stephanie Liou – Project Leader & Student Researcher & Webmaster, B.S. in Science, Technology, and Society
  • Briana Tatum – Student Researcher, B.A. in Human Biology
  • Yi Lu – Project Leader & Student Researcher, B.A. in Anthropology
  • Elizabeth Heimbaugh – Graphic Designer, B.A. in English
  • Joey Masri – Project Leader & Graphic Designer, B.A. in Human Biology
  • Margot Hedlin – Project Leader & Student Researcher, B.S. in Biology
  • Pooja Bakhai, Researcher, B.A. in Human Biology
  • Tiffany Wang, Project Leader & Researcher, B.S. in Biology
  • Faren Clum, Project Leader & Researcher, B.A. in Human Biology
  • Danny Neumann, Web Developer, B.S. in Geophysics
  • Andrew Pipathsouk – Researcher, B.S. in Mechanical Engineering
  • Chelsea Garnett – Researcher, B.A. in Human Biology
  • Jean Ansolabehere – Researcher, Senior in Human Biology and English
  • Natalie Justicz – Graphic Artist, Senior in Human Biology
  • Adam Hepworth – Project Leader & Researcher, Senior in Human Biology and Philosophy
  • Mesa Schumacher – Graphic Artist, B.A. in Anthropological Science
  • Amy Frohnmayer – Researcher, Psychology
  • Eric Whitney – Researcher, Human Biology
  • Jonathan Dyal – Project Leader & Researcher, B.A. in Human Biology
  • Justine Seidenfeld – Researcher, B.A. in Human Biology
  • Matt Woloszyn – Researcher, English
  • Alicia Follmar – Researcher, Human Biology
  • Aliyya Haque – Researcher, B.A. in Human Biology
  • Christina Chen – Project Leader & Researcher, B.A. in Human Biology, ’07
  • Devon McGee – Project Leader & Researcher, B.A. in Human Biology, ’06
  • Stanislav Jourin – Art Director, M.S. in Digital Imaging & Design at NYU, ’04
  • Kim Taub – Project leader & Researcher, B.A. in Human Biology, ’05
  • Taylor Altman – Researcher, B.A. in Human Biology
  • Jia Hou – Researcher, B.A. in Human Biology
  • Agnieszka Milczarek – Researcher, B.S. in Biology and B.A. in English
  • Leon Hsu – Researcher, B.A. in Human Biology, ’05
  • Clare Tobin – Researcher, B.A. in Human Biology
  • Michael Morici – Researcher, B.S. in Biology
  • Tonkid Chantrasmi – Web developer, Graduate Student in Mechanical Engineering
  • Shawn Fu – Web developer & graphic artist, B.S. in Biology, ’03
  • Amy Hsu – Project leader, B.S. in Mathematical and Computational Science, ’02
  • Matt Stenerson – Project leader & researcher, B.A. in Human Biology, ’03
  • Cathy Barnard – Researcher, B.A. in Human Biology, ’04
  • Kaizad Cama – Researcher, B.A. in Human Biology, ’03
  • Peter Chang – Researcher & web developer, B.S. in Biology ’03
  • Darwin Chen – Researcher, B.A. in Human Biology, ’02
  • Tucker Cunningham – Web developer & graphic artist, Senior in Computer Science
  • Jaclyn Czaja – Researcher, B.A. in Human Biology, ’02
  • Karen Hammond – Researcher, B.A. in Psychology at Carleton College, ’03
  • Kelvin Ho – Web developer & graphic artist, B.S. in Computer Science, ’04
  • Tracy Ho – Researcher, Senior in Human Biology
  • Vinita Kailasanath – Researcher, B.A. in Human Biology and American Studies, ’03
  • Shashikant Khandelwal – Web Developer, Graduate Student in Computer Science
  • Ruth Lo – Researcher, B.A. in Human Biology, ’04
  • Jean-Gabriel Morard – Web developer, Graduate Student in Computer Science
  • Melissa Schapiro – Researcher, B.S. in Biology & Psychology, ’04
  • Gina Schiel – Researcher, Senior in Human Biology
  • Elyn Tan – Researcher, B.A. in Human Biology, ’03
  • Joakim Vinberg – Web developer and graphic artist, B.S. in Biotechnology, ’04
  • Belinda Fu, M.D. – Faculty advisor, Lecturer, Department of Human Biology
  • Joanna Mountain, Ph.D. – Faculty advisor, Assistant Professor, Department of Anthropological Sciences and Department of Genetics
  • Ronald Barrett, R.N., Ph.D. – Faculty advisor, Assistant Professor in Medical Anthropology