“Living with Hope: Understanding Holoprosencephaly”
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1. INTRODUCTION


2. SEARCHING FOR HOPE


3. WHAT IS HPE? HOW DOES THE NORMAL BRAIN DEVELOP?


4. WHAT IS THE DIFFERENCE BETWEEN ALOBAR, SEMILOBAR, LOBAR, AND MIHF?


5. WHAT CAN WE EXPECT?

6. COPING WITH THE CHALLENGES

7. WHAT ARE THE CARTER CENTERS?

8. WHAT IS THE INTERNATIONAL HPE REGISTRY AND DATABASE?

9. IS HPE A GENETIC DISORDER?

10. HOPE ON THE HORIZON

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