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Support and Resources

Families for HoPE

Christi Urshel Family Resource Center
Resource Center for Parents of children 
with special needs. 
(214) 559-7573

National Organization for Rare Disorders (NORD)

Parent Support Group Information
Provided by Chuck Brady

Family Village

Epilepsy Foundation

NOAH (New York Online Access to Health)
Preguntale a NOAH sobre la salud

Parents Helping Parents (PHP)
The Family Resource Center

PEDINFO
An Index of the Pediatric Internet

MedicineNet

Information on assistive technology

Medical Matrix

Healthnet

Healthfinder

Patient Support Groups

Health Explorer

HealthWeb

Alliance of Genetic Support Groups

Internet Resources for Special Children

MUMS parent-to-parent network

Institute for Child Health Policy

MISS Foundation
Bereavement

Compassionate Friends
Bereavement

Family Voices

E-Parent

Association of Birth Defect Children (ABCD)

Wide Smiles
Support and Resource for Cleft Disorders

Rare Genetic Disorders

KidsMove
Devoted to pediatric movement disorders

We Move
Movement Disorders:
Spasticity, dystonia, artane, Botox, braces, surgery, etc.

New Online HPE Parent Newsletter



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