We are the parents of a 13y/o girl who was born with holoprosencephaly and agenesis of the corpus colossum. We have been through a lot together in terms of her medical care, Soon after birth she went through a series of facial surgeries to repair a cleft lip and pallet. She has been under the ongoing care of Shriner's Hospital for crippled children that have provided e.f.o leg braces and customized walkers because she has never been able to walk on her own. I entered this site hoping to meet other parents of children with conditions similar to hers and have some advice for the future care. She is becoming a teenager now and dealing with that stage of life is difficult enough for a normal child but becomes very frustrating when combined with this condition. If there are other families that are new to this condition, perhaps we can offer up some support based on our experiences.