Hi! So strange to see so many enteries! My daughter is 13 and I was told this is so rare. This site has really helped a lot in the early years and I have learned to be more hopeful and to keep my mind open when it comes to how much she will be able to do, understand and teach- myself, my family/friends and the community. After all the fear, we finally had another child, another daughter, and she has also helped my oldest-Autummn-grow and mature! I am willing to speak/email anyone who needs to have some hope, understanding, insight, tears/laughter, or just an ear from a parent who has been where they are and I may be reaching out as well as there are always more challanges, but as I have learned, always more hope! Thank You! Brandi