Hi everyone..I'm writing from Belgium. We don't have information here about HPE. So I was very exited when I found this site! We have a son with HPE. He's in between the lobair and semi lobair. At 30 weeks of pregnancy they saw at the ultrasound that there was something wrong. First they thought he had a bleeding in his skull among the brain, this would give presure and he would die..to be sure they made an MRI 2 days later. Then they knew that it was HPE. Every week we went to the doctor and every week they told us different. We went from "prepare his funeral 'cause he won't make it" to "he will make it but he will be very handicaped".. They even suggested to end the pregnancy..we went through hell, but we always said "only God gives or takes"..finally they planned his birth at 37 weeks. We were very scared and didn't know what to expect..18 september 2008 our beautiful son was born! He was doing very well and has no other handicaps..now he's 10 months and just by looking at him you can't tell there's something wrong. He sits by himself and tries to crumble. He's a very cute boy who laughs all the time and suprises doctors every day. They follow him up but not because he needs it but because they're curious how he will develop. They want to make a new MRI when he's 1 year, cause the first MRI and the ultrasounds taken after his birth are very impressive..the back of his brain isn't seperated for 1/4 and he has big holes at the side of his brain..Looking at him it's impossible that he's doing very well..they call it a miracle! Last time we went for a check-up they thanked us for not listening to end the pregnancy.. We take everthing day by day and nothing for granted. They scared us a lot and I'm afraid of what will come..will he do just fine or will the bubble burst one day? There are no other families here or cases the doctors know about so I thank you all. We thought we were alone..God bless you all. Never give up believing ..we like to believe that God trusts in us. Anyone can raise a child, but raising a special child needs a whole lot love, patience and courage...