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36 Elysium Road
What an incredible twelve months our girl has had. Sophie has begun both early intervention school group and one day of regular child care this last year. She absolutely loves both settings and her teachers and carers adore her and have told me that the highlight of their week is the day they are with Sophie. She is now walking quite well, has decided that she is definately one of the kids and wants everything that her older brothers and sister have.
Medically we have controlled her DI well this last year and in October she began having more pronounced evidence of seizure activity. Not outwardly but she was having a lot of trouble with her balance - one leg wouldn't work properly and she was wobbly. The neurologist prescribed medication and she has been wonderful. We are on low doses and this seems to be working well for her. She has put on quite a lot of weight and she is as strong as an ox.
Her biggest frustration is probably her lack of speech. She tries to communicate by gesturing, nuances of tone and pointing but she gets frustrated if we are not paying attention. We are working on sign language and trying to get some funding for speech therapy.
I know that the first few years after diagnosis are a real roller coaster emotionally, but we feel as if we have our seat belts strapped firmly now and we just go with the ride and are really enjoying our precious girl and our family as a whole. She is the most amazing, beautiful and loving little girl and we feel so blessed to have been entrusted to be her parents.
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