To all families dealing with a child with holoprocencephaly. My daughter is now fixing to turn 10 months old its so amazing because the doctors never thought she would make it this far. I just want to say to all families in the same boat me n my husband are with our child dont give up hope. I know it can be hard trust me I have been in that same boat but never give up hope. Im a 18 yr old girl with a child nooned thought would live and if she did shed be basicly like a vegetable. Since then, she has been taken off of DNR and i just got news from the carter center that her holoprocencephaly has not affected any of her brain fuctions from the research they did on her medical files. My heart goes out to all parents dealing with this situation. The carter center has given me that spark of hope I never thought possible. I know she will never be completely normal but knowing that she will be able to walk and talk and do all the noraml things kids do has brightened my life so much. So many times i was so close to giving up carrying my daughter n i was so scared for her so many times i was told to consider abortion but i had to give her that chance at life and im glad i did... shes so beautiful and shes got the biggest smile that brightens my life. And i am so glad the good lord gave her the chance.. I know theres proably children that are alot worse off then my daughter but all i can say is dont give up and live life to the fullest with your child. make every day a memory because you never know what day could be there last trust me even though the doctors say my daughter is ok i still live life that way like its the last day. it might sound bad but i believe its the best way to live. I pray for each and everyone of you all families dealing with the same situation Ive went through with my daughter and even though i dont know you all i want you all to know my heart goes out to everyone in the same situation, you all are in my prayers. Just have faith and spend as much time as you can because as I have learned with my exsprience at being a new mom theres noting no greater no more precious then ur child and they are defiently your world. you all are in my prayers god bless everyone