Our son Caleb was diagnosed with lobar hpe at just 4 months old. We saw some decreased activity in him and i was beginning to notice he was having difficulty seeing. we had an MRI done and the results came back that he has lobar hpe. I was speechless but thankful that my son was healthy and happy. Caleb is such a miracle child he is such a people person and has the best personality. You would never be able to tell that he has anything. He looks like the average kid but those big dimples and bright blue eyes get the girls everytime!!! He's such a flirt! He went wearing the helmet (he had a flat spot, it kind of molds the head, getting more and more common, don't know for sure if that ties in with hpe)for a couple of months. Caleb has to wear glasses now, his eyes kind of flutter around, its called nystagmus. But you can hardly tell he has it now, its really only when hes tired or wakes up. Caleb has never stopped wanting to learn. He's such a bright, loving child and I thank God for him everyday. Being just 18 years old and hearing the doctor tell you, "your son has a condition called holoprosencephaly," I was so scared. But being more educated, I have so much faith in Caleb. He's never let me down. I just have to push him to learn something, even though he sometimes gets frustrated and wants to give up, he always amazes me. Caleb now attends daycare and all the kids love Caleb and visa versa. He loves to interact with the other kids also. He's attending therapy twice a month and a therapist is going to work with him every week at his daycare, while I go to school. Caleb is now 20 months old and has been walking for about 1 month. He can run and is learning to stand up by himself when he falls down. We celebrate each and every milestone that he accomplishes! My aunt is also a speech language pathologist, she will also work with him in the future. I was going down a really bad road in my life before I ever knew anything of Caleb, but this little boy changed me for the better. I live for him and could never picture us without him. Anyone with this condition like Caleb, all I have to say, don't give up on them!! Keep pushing them to learn and expand their mind. Because anything is possible!! And Caleb truly is an example of that!!