i found out my son had hpe when i was 7 months. it was a total shock as both families have no members with special needs. merik romeo was born august 29,2006 by c-section as he also has severe hydrocephalus. we were told he might live or not but its been a year and all is well. at first i thought hpe had only one degree not the few as depending on how much the brain has separated anyways my son's brain did not separate at all. we were told he'll be a vegetable and there is a slim chance he'll walk. just in the last couple of months he is rolling all over the floor. and sometimes very vocal. just needing some support from others. also is there an annual gathering for families effected by hpe?