Hi to all of you who have children with HP I am Janie Geralds 17 years old and proud parent of a 5 month old baby girl with HP. I was 8n months pregnant when my daughter was diagnosed with HP. For a 17 year old it was very freighting. Never have I had to deal with any life changing exsprience before. The doctors where very unsure my daughter would even live while giving birth to her. Every day I prayed constantly pleading to the good lord to give my daughter a chance at life, my church family, my family and friends, churches all around the county, and even strangers I didnt even know I found out where praying for my little girl also, praying that some how god would spare her life. Being a juvinille diabetic, and a 17 year old mom, it was extremely hard and freighting to me, that I could loose my baby girl... March the 30th she was born perfect face, perfect handes, perfect feet, perfect everything. After she was born she was diagnosed with semi lobar HP... So far my baby girl has amazed all of her doctors. They can not blieve a little girl which such a horriable brain condition. Is just like a normal child except she has HP. She talking now, laughing, smiles all the time, trying to sit up on her own, rolling alll the way over, holding her own bottle, eating baby food, and shes even trys to sing or it seems like it when she hears me or her daddy sing to her lol.. Everything the docotrs told me she wouldnt be able to do she's doing, which is a blessing from god. So for parents whose childrenw here recently diagnosed with HP there is hope just trust in god. With the prayer and faith god can do anything.. My little girl is 5 months old now and weighs 18 lbs and is 26 1/2 inches long, shes growing so much and its unbelievebale how much shes growing into a beautiful girl.. Every day shes learing something new. God has defeintly blessed me. So for all you parents, trust me there is hope.. You just got to have faitht hat evrything will be ok, even though it seems like your life is falling apart and you may loose your child due to HP. God bless you all and I pray for all parents who have a child with HP that god will be with your child and family