I found out my daughter had severe semi-lobar Holoprosencephaly the evening that she was born. She was born with a cleft lip, cleft palate, microcephaly, and she had seizures up until she passed away. We fed her through a feeding tube and we were told when she was born that she would not survive the night. Tehya did survive and she fought with us for 2 months and 11 days. I was told her condition was incompatible with life by the Drs. and that if she did live the next few weeks, she would not know nothing. Just keep her comfortable and hold her and love her. We did that with her and so much more. To this very moment, I know in my heart that she was not that "vegetable" that she was supposed to be because she did so much more than she was supposed to. She was a baby that came here to live , if only for a couple of months. I think that she felt the love and not even being incompatible with life was going to keep her from receiving and giving back the love that all of us felt for her and she gave us. I beleive that God extended her stay and took her home again. Leaving us with memories of our precious Angel that we loved so deeply and miss terribly. We call it a blessing, not a tragedy, not a loss. Our baby was a gift from God. She was born December 14, 2006 and passed away February 26, 2007. www.tehyajefferson.memory-of.com