At 27 weeks and having just arrived from a trip to the USA, my son was diagnosed with colpocephaly. Three hours later I was admitted to the Children's Hospital in Barcelona to do additional tests. In all of this confusion and commotion, Lion was born (naturally) at 29 weeks and diagnosed with having a severe hydrocephalous, and was confirmed with Lobar HPE a year later. I remember the first time I gave him a bath at the hospital: He was as stiff as a log! From that moment on, we took Lion "as is" and carry him like we did with our other son. No "ifs" or "buts". He went where we went. If we travelled one hour or 15hrs, Lion was there and given the opportunity to discover his world. It has been and still is a challenge, me doing some PT/OT & SP while playing, whenever we're away from home. Our move to Florida two years ago stalled his evolution. To my desperation he only got 27 hrs of PT in 7 months and useless paperwork! Now five, Lion is still a very happy, beautiful bright boy. He began anti-epileptic treatment and he still does not walk, crawl or talk. But in just 5 months, Lion has and is improving physically; his "spaguetti" legs are no longer there, he practically has no spastism; he plays with his friends at school and he sure knows what he wants. He will soon walk by himself and discover another perspective of life and we'll pick up another challenge for him. Isn't that what life is all about? My instincts as a mother, my creativity, my drive are all acute and keen thanks to Lion. I am just sorry to learn the many children that are born with so many difficulties and challenges, for I do not wish anyone to go through what we go through. It's a fight none-the-less, in all senses: Politically, socially and "humanly" and that is a hard lesson for these children to understand. I wish each and every one of you the very best.