Harrison was born into Heaven on March 8, 2004. He was 4 years and 9 months old. We encourage those just coming into the world of HPE to surround yourselves with knowledge. I am currently working with Leslie Harley in a non profit organization called Families for HoPE, Inc. We thank the Carter Centers, NIH, KKI and the other parents coping with a diagnosis of HPE for being a strong support for us while Harrison was here on Earth and also for continuing to support us in our journey with our grief. Many Blessings, Heather