I am currently right at 20 weeks pregnant with a baby girl. I just found out a week and a 1/2 ago that my daughter might have the semi-lobar form of this disease. The doctors say they think she has a cleft lip and but her heart does have 4 chambers. I have been severly upset waiting on test results from an amniocentesis and blood work. Me and my husband have a 2 year old that is perfectly fine and we just a looking for any additional info. We don't want to abort the pregnancy which is what doctors have suggested because they don't think that she will live.If there is anyone who has any additional info that would help us please e-mail us a chara30@hotmail.com thanks