Update: Savannah passed away on January 17th, 2001 and we still think about her and her conidition daily. We would love to hear from families who are going through this or have been through it. I know Savannah is at peace now and her story has helped so many. I keep her website going and hope that you will visit it often at http://www.geocities.com/shelll1105/Norman_family.html Thanks, Love Shelley, Todd and Savannah's siblings Lyndsey, Lucas, and twins Ethan & Noah