Hello, I just found this webpage today. My husband and I have 2 years old daughter with holoprosencephaly. We do not know what caused for our daughter born with holoprosencephaly. We try to learn more about this dignosis everyday. Doctor told us that she may not last long while she was in intensive care unit for baby at the hospital. She can not eat so she got G-tube. She can not sit up because she have no neck strength. I would like to hear or read from other parents how they deal with their child(ren) with holoprosencephaly everyday.