We have two beautiful daughters, Haley who is 5 and Holly who is 6 months. Our daughter Holly was born on May 10, 2004. When she was just one day old, after doing some tests, our pediatrician came to us and told us that our beautiful baby girl had holoprosencephaly. We were in shock! We had never heard of this before and had no idea what this was. We immediately began gathering all of the information we could. We wanted to learn everything we could to help her be the best she can be. All we knew was that she had HPE but no idea what form, because her mri was slightly blurred. Needless to say we were scared about the road ahead. She is now 6 months old but in most of her ways on the develpomental level of a 2 month old. She is currently in physical and occupational therapy several times a week. She has a partial cleft lip and palate. She has partial seizures and her wonderful neurologist is working with us to find the right medicine for her to help control them. She holds her head up, eats from a spoon, laughs, coos, rolls one way and smiles. In therapy we are working toward loosening those tight muscles, opening her hands to hold things and helping her to learn to sit up by herself. We have been through so much and we have a long road ahead of us. I just thank God every day, and take it only one day at a time. The people I have talked to have been great and really supportive. She has also been blessed with some really fantastic doctors. Everything happens for a reason and God sends special children to special parents. I truly believe that because he sent us an angel from heaven, HPE or not I wouldn't trade her for anything in the world. She has truly made our lives richer. I am happy to report that thanks to the Carter Centers our Holly has been diagnosed with middle interhemispheric variant. Please feel free to email us at anytime.