Just found that our 5 month old son, Ryland has HPE. Don't know what really is going to happen. He was born with a small head and we didn't think anything was wrong. He is a happy baby and is growing good. The only things that he is behide on is holding stuff and sitting up. The doctor said that it is just a waiting game now to see what will happen. Please write if you have anything that will helps us out.