After four and a half years of trying for another child we were so excited having found out we were having twins that happiness was taken away from us when i went for a routine ultra sound.The doctor told us there was a difference in size with the babies but he could not tell what was wrong we had to wait 5 days to see a specialist.when the specialist told us what was wrong we did not have any idea what this disorder was so thank god for this site.my pregnancy seemed so long not knowing what was going to happen the doctors could only tell me that one of my babies had the worst form of this disorder.The said that if it survived birth they did not know how long it would live.They told me they did not think it had eyes and it had a deformed nose I said i would love my baby no matter what it looked like.I prayed to god every night that he would a least let my baby be born alive and not die inside me as i still would have to go full term for the sake of my healthy baby.sadly at 31 weeks i went into premature labour it was so frightening i had to have an emergency section ihad 2 beautifull girls sadly Eva only lived for 1 hour she was gorgeous we could not see if she had eyes and her nose was tiny with only one nostrile but for that hour she was perfect to us.Molly who the doctors clled the healthy baby was now critically ill and we could not grief poor Eva for worrying about molly but thank god she pulled through.We will never ever forget our beautifull Eva and we are so pleased we had some time with her.