Our daughter Kennady will be 1 year old on the 24th of November. We can hardly believe that it has been a year already. We had our first ultrasound at 30 weeks along in our pregnancy when we found out there was something wrong. The doctor told us that she had profound hydrocephalus and would not be able to see or hear or do much of anything. When she was born, we were told, not only does she have profound hydrocephalus, she has Alobar Holoprosencephaly. We could hardly believe it could be any worse. Kennady was in the NICU for 6 weeks before coming home. She has Diabetes Insipidus, a V.P. shunt and has overcome Infantile spasms. She is doing AWESOME!! I can't tell you how oposite she is from what they said she would be. She can hear see and laugh so preciously. She is an absolute joy!! It is the hardest work I have ever done raising a child with a disability, but it is rewarding beyond mesure when she smiles. To all of the parents out there who may have just recently gotten a bad diagnosis, there is HoPE. Every situation comes with a different outcome, but none the less, never give up hope. If you ever have questions, the Yahoo e-mail group (look for it on this website) is great for basic questions and just talking to other parents about having a child with HPE. God has worked a miracle for us and without him we couldn't have made it this far. I pray that each of you will find peace in your journey with a child with HPE! Sincerely, The Steele Family