I WANTED TO SAY I HAVE READ MANY STORIES, I AM SURPRISED WITH HOW MANY BABIES HAVE HPE. I THOUGHT THIS WAS A RARE THING. IT IS MORE COMMON THEN I COULD HAVE EVER THOUGHT. THE STORIES ARE SO HEART FELT, SOMETIMES I CAN NOT READ THEM THEY MAKE ME SO SAD, OTHER TIMES THE STORIES GIVE ME HOPE. I WANT TO TELL THE PARENTS OF CHILDREN WITH HPE TO LEARN & EDUCATE YOURSELF CONTINUALLY. AT FIRST YOU GO THRU THE SHOCK, BUT YOU HAVE TO LEARN ALL YOU CAN ABOUT HPE. I AM STILL LEARNING, EACH DAY WE LEARN. BUT I WAS SO UNAWARE AT FIRST OF WHAT TO EXPECT WHAT IT ALL MEANT. I WANT TO KNOW IT ALL. MY SON IS A BLESSING & A GIFT. NICHOLAS HAS SEMI LOBAR, RECENTLY DEVELOPED D.I.. DIABETICS INSIPIDUS. WHICH IS ASSOCIATED WITH HPE BABIES. WHICH I DID NOT KNOW - NOW I DO. I CONTINUE TO ALWAYS ASK QUESTIONS,I KEEP READING MATERIAL REGULARLY ON HPE TO CONTINUE LEARNING MORE EACH DAY. I LEARN THE MOST FROM MY SON HIMSELF. I AM VERY LUCKY TO HAVE ALSO SUCH AWESOME DOCTORS. NICHOLAS IS A GIFT. BEAUTFUL LITTLE BOY WITH SO MUCH LIFE. A SMILE THAT IS SO CONTAGIOUS. A VERY GOOD NATURED BABY. HE IS GIVING US PROMISE & HOPE WITH HIS DEVELOPMENTS & ACHIEVEMENTS. I BELIEVE WITH LOT'S OF LOVE & PRAYER MIRACLES CAN HAPPEN!!!!!!!!!! TAKE CARE GOD BLESS