Our son Michael was born March 13 1998. We were unaware of any problems untill 38th week when Michael was born by emergency c-sec. Michael was born with semi-lobar hpe, and hydrocephaly.Michaels Head was extremely large and the CT-Scan showed no brain, only fluid. The Doctors said he would die, and told us 2 weeks-2 months. Michals is now 4 years old, he was shunted at 10 days, and has no facial abnomalties. The Doctors kept saying, but his face is perfect. A year went by and we found hope and courage. Michael can see and hear, he has a wheelchair, a wagon, a standing frame and a walker. Michael will sit assisted. In the past 2 years we have had lots of sleep problems, terrible behavior fits, trouble drinking, lots of constipation, athsma, and lots of colds. Michael loves school, music, lights, Elmo,and people. The Doctors are amazed, especially that Michael can see. The Doctors have told us,do not get attached, these children do not do well. The Doctor now wants a GT Feeding Tube for Michael. We are unsure at this point as we feel Michael loves to eat and we would use this only as a last resort. Gordon and I have no other children, we cannot imagine how we could possibly care for another child. Michael is constantly in need of all our attention, and is often fussy and we can only guess why. I hope to hear from any one who wishes to contact us. Today we had a good day, when Micheal is happy we are happy too. We wish you all strenght and hope.