Our son, Paul, was born on 7 February 2000. At 6 weeks old he was diagnosed with alobar HPE.

As with most families, as we have since discovered, the prognosis we were given for Paul was very poor.

He has spent long periods of time in hospital but has been home now for 5 months which is great. He has a VP shunt and a gastrostomy tube for feeding. He also has DI but no seizures!

Paul is now over 18 months old and has surprised everybody with his determination to enjoy life. He loves attention, is a constant flirt and smiles at anyone who catches his eye.

Paul attends nursery 2 and a half days a week and thouroughly enjoys mixing with the other children. He receives physio and OT weekly at nursery and alternate weeks at home.

Paul has a big sister Emma whom he adores. They have a special relationship which is wonderful to watch.