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3021 Imperial Dr.
My son Andrew was born on March 12,1992. It was not until he was 35 months old did we find out that Andrew suffer from semilobar holoprosencep-haly, agenesis of the Corpus Collosum, and dia-betes insipatus. He had had a bad cold which kept
getting worse. In a matter of hours he went from
a nasty cold to being semi-conscious. Upon arrive
at the hostipal it was determine he had a sodium
level in the high 190's. He was airlifted to
Children Hospital in St. Louis, Mo were we were
given little hope of survival. Luckily one the doctors diagnosis his condition immeditaly and
Andrew was stablized after two weeks in Intense
Care. It was during this time that we wer inform
of his complete medical condition. My wife and I
had already lost a daughter a few years early from
a more serious form of this condition. At that time we were told it would be one in million if it
happen again. Andrew is doing very well now. He is in 3rd grade. He receives physical therapy for both fine and gross motor skills and a full time classroom aide to help him with his schoolwork
he has made remarkable progress in recent years.
P
It took us a awhile to finally kept his sodium incheck, but with his DDvap and careful attention
to his fluid intake we can kept his sodium at normal levels for him.
P
You can email me at gwatt1@worldnet.att.net if you
have any questions or comments.
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