Carter Centers for Brain Research
About Holoprosencephaly

Research

Support and Resources

The Carter Centers

Home



Shonty The Wamplers'

2836 Harrison Ave.
Terre Haute, IN, 47803
S,Wampler@GTE.Net


My name is Shonty Wampler,my daughter just turned 5 on Aug.18. When I was pregnant with her I was very sick all the way through my pregnancy she was born a day late, the Drs'. said that every thing was okay except that her was small and that there wasn't nothing to be concerned about.

She was acting like anormal little baby har head still was growing like it should have been and she was starting to loose wieght, it wasn't untill she was six months old a Dr. finnaly sent us to see a Nurologist he said that she needed to be admitted into the hospital right away because she was very malnutrioned meaning that she was dying. So we stayed ther for two weeks doing every test possible to find out what was wronge with her discovering that she was Semilobar Holprosenmicrocephaly,during that two weeks there Kylie had a gastrostomy button put in because she didn't want to eat by mouth anymore it became impossible to get her to take anything. After we left the hospital we decided to move from Kansas to Indiana to find better Drs.

As she got older she started getting her teeth usually this is'nt a problem but for us it was because she now has a severs compulsive biting disorder she bites her fingers clamping down so hard that is almost impossible to get her fingers out,Kylie is currently taking Prozac for this but it doesn't seem to be working the way that we were hoping.

We've also tried a few other medications still no good results. I've been doing my own research on this hoping that I find answers to my questions, if anyone can help me with this please contact me my E-Mail address is S.Wampler@GTE.Net as soon as possible with any information it would be truely appriciated.



To update your family page, click here.

About HPE | Research | Support | The Centers | Home

Carter Centers