Research in Progress

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A Case of Genetic Discrimination?

In October 2003, a young teacher in Germany was refused a permanent job due to her medical history. During a required civil service medical examination, she was identified as being at a high risk for developing HD because several members of her family have the disease. In order to save money from absenteeism caused by illness, government authorities in Germany can lawfully refuse employment to candidates who are ill or are likely to become ill.

The teacher has decided to contest the government’s decision in court with the backing of the German National Ethics Council. Professor Spiritos Simitis, chairman of the Council, stated that it was unjust for the government to reject her for a job based on a “mere prediction” of her future health.

This situation raises many ethical issues, not just in Germany but also around the world: Should there be laws against government-mandated genetic testing? Should the information from genetic tests be available to employers? Most importantly, should this information play a role in employment?

To view the full text of the article “Teacher was refused job because relatives have Huntington’s disease,” please click here.

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Last Modified: 04/12/2007


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