The science and practice of testing for Huntington's disease
What are the potential consequences of genetic testing?
Individuals undergoing a blood test may experience discomfort from the needle prick and may develop a small bruise at the site of blood withdrawal. Aside from these minor physical risks, people considering genetic testing are often concerned with other potential consequences such as difficulties with confidentiality, genetic discrimination in employment or insurance coverage, and how the test results may affect family dynamics or personal relationships. These are valid concerns that warrant much consideration and discussion. However, these topics will not be discussed here because they touch on issues beyond the scope of this website, which focuses on providing scientific information about HD. Many resources are available for information on these issues through genetic testing centers, Huntington’s disease organizations and literature, and local support groups.
To access information from the Huntington's Disease Society of America (HDSA), click here.
For a list of testing centers published by the HDSA, click here.
Some of the issues related to the implications of genetic testing for the HD allele can be found in these two articles:
Additional information regarding genetic testing can be found here.
For information from the Huntington's Disease Advocacy Center (HDAC) on political issues related to HD, click here.
Last Modified: 05/22/2009
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